Trenton, NJ – With 25 years coaching experience, Alex DePalma was searching to make a difference in a new arena. So in 2009, he began the Brick Stars Challenger Program to bring together children and adults with developmental disabilities for an hour each Sunday to teach them to play and enjoy the game of ice hockey. To honor the commitment, success and remarkable growth of the Brick Stars Challenger Program, First Lady Mary Pat Christie today joined Alex DePalma on center ice at the Ocean Ice Palace in Brick to name him the fourth New Jersey Hero of 2012.
“Through the game of hockey, Alex has found a creative opportunity to encourage children and adults with Autism and other developmental disabilities to learn valuable life skills that will help these players overcome challenges in becoming more confident and independent individuals,” said Mrs. Christie. “Seeing the joy each skater is experiencing as well as the pride expressed by their parents makes this an incredibly inspiring program. I am proud to name Alex DePalma our New Jersey Hero for the month of April.”
The Brick Stars Challenger Program is for participants between the ages of 5 and 21 who have a developmental disability, such as Autism. The program, which helps players learn fundamental skills, began with just 8 players in 2009. By the end of the first season, it had a total of 25 players, making it the fastest growing special needs program in New Jersey.
“When I received a call that I had been selected as the New Jersey Hero for the month of April by First Lady Mary Pat Christie, I was extremely honored and very proud to represent our Stars Challenger Hockey program,” said Brick Hockey Club ACE & Stars Director Alex DePalma. “The players and parents involved in the Stars program show amazing courage and determination every week, inspiring and enriching the lives of all who volunteer their time to teach these amazing kids how to play hockey. They are truly our heroes.”
The Brick Stars Challenger Program is part of the Brick Hockey Club Organization and is a 501c (3) organization. Coaches are USA Hockey certified and the program is operated by volunteers consisting of local coaches, current and past Hockey Club members as well as local high school players.
New Jersey Heroes is an initiative of First Lady Mary Pat Christie that showcases the positive and unique ways people and organizations are impacting New Jersey and their communities. To nominate a hero, go to http://newjerseyheroes.org and follow the application instructions to submit the person you believe is a true New Jersey Hero.
In addition, Autism Awareness is an advocacy area embraced by Mrs. Christie to bring greater understanding of the developmental disability. Throughout the year, she highlights the innovative work being done by organizations throughout the state to serve people with Autism Spectrum Disorder (ASD).
For more information about Brick Stars Challenger Program, visit www.brickhockeyclub.org.
Posted: April 27th, 2012 | Author: Art Gallagher | Filed under: New Jersey | Tags: Alex DePalma, Autism, Brick, Brick Stars Challenger Program, First Lady Mary Pat Christie, Hockey, NJ Heroes | 2 Comments »
Smith, author of Combating Autism Reauthorization Act: “New autism data shows ‘Developmental Disability Pandemic’; Must mobilize to find cause, assist victims”
WASHINGTON, DC – New alarming data provided by the Centers for Disease Control and Prevention (CDC) shows 1 in every 88 American children and 1 in every 49 New Jersey children has a form of autism.
“The national numbers, including and especially in my home state of New Jersey, are shocking,” said U.S. Rep. Chris Smith (NJ-04), author of Combating Autism Reauthorization Act, Public Law 112-32. “Each one of these statistics represents real children and real families who struggle and need our help and assistance.”
The study also found a continuing higher prevalence of ASDs in boys than girls (1-in-252 girls and 1-in-54 boys). However, in New Jersey, of the 1 in 49 children with a form of autism, Smith noted a staggering 1 in 29 boys with the disability.
“We as a nation must do much more, especially to determine causation and ensure early diagnosis, so interventional care can begin as early as possible. The stakes are so high: the quality of life of so many children is at risk. We need research, new treatments and a path to a cure.” said Smith, who also authored the provision in Title I of the Children’s Health Act (PL 106-310) which created the Centers of Excellence in Autism and Pervasive Developmental Disabilities Epidemiology that carried out this study.
“Prevention, treatment and ultimately a cure for this developmental disability must be our highest priority. We need to bring a ‘Manhattan Project’ type focus to this essential life saving work. Delay is not an option,” Smith said.
Smith’s landmark legislation enacted in 2000—the Autism Statistics, Surveillance, Research and Epidemiology Act (Title I, P.L. 106-310) created the first comprehensive federal program to combat autism. In 2011, another piece of legislation he authored The Combating Autism Reauthorization Act(CARA)”— (now Public Law 112-32) was enacted and will provide $693 million over the next three years to continue the program.
“The new CDC data shows a sharp increase from the appalling 2006 data that documented 1-in-110 children with an autism spectrum disorders (ASDs)—a 23 percent increase,” Smith said.
This morning, Smith , the Co-Chairman of the Congressional Coalition on Autism Research and Education (C.A.R.E.), spoke to Dr. Thomas Frieden, Director of the CDC, about the new data. The information was set to be released at a CDC briefing for Congress Thursday afternoon.
The CDC study, entitled Prevalence of Autism Spectrum Disorders – Autism and Developmental Disabilities Monitoring Network, provides autism prevalence estimates from 14 states, including New Jersey. It was published today in the Morbidity and Mortality Weekly Report.
Smith’s law, CARA, signed September 30, 2011 authorized for each of the next three fiscal years: $22 million for the Developmental Disabilities Surveillance and Research Program; $48 million for Autism Education, Early Detection, and Intervention, and; $161 million for hundreds of Research Grants at the National Institutes of Health (NIH), and for the Interagency Autism Coordinating Committee.
In May 2011, Smith chaired a hearing on U.S. and global autism. He also has written two other bills in the current 112th Congress: 1) H.R. 2006, “The National Autism Spectrum Disorders Initiative Act”; and (2) H.R. 2007, “The Autism Spectrum Disorders Services Act.” Smith’s H.R. 2006 designates the Secretary of U.S. Health and Human Services Department to head the national autism effort, and authorizes the Secretary to approve a strategic plan developed by the Interagency Autism Coordinating Committee (IACC), in consultation with the National Institute for Health. H.R. 2007 establishes a planning and demonstration grant program for services to children, transitioning youth, adults, and individuals of any age who may be at risk of injury, authorizes grants for protection and advocacy systems, and creates a national training initiative to better equip teachers and autism services providers.
Posted: March 29th, 2012 | Author: Art Gallagher | Filed under: Autism, Chris Smith, Congress, Press Release | Tags: Autism, CDC, Center for Disease Control and Prevention, Chris Smith, Combating Autism Reauthorization Act, Congressman Chris Smith, Press Release | 4 Comments »
